Month Two, It Comes in Waves..

They say it comes in waves. I truly get that now. I have watched it hit us all at random times. Last week the house was slam full and noisy. Matthew and I were cleaning up after dinner and both turned towards the window and I felt him take a breath to speak and then he froze. When I looked at him his gaze turned towards me and his eyes were full of tears. He was going to yell at everyone to quiet down before they overstimulated Ky. He said- I forgot for a second, I haven’t forgotten in so long. 

It feels like forever since we have held his little body, kissed his juicy lips or cared for him in anyway, and in the same breath it feels like yesterday. We don’t go in his room as much, and we can’t decide if that feels good or bad. 

A new gift of anxiety has come in waves as well for me. I am the most non anxious human you will ever meet. Parker was gone from home a few weeks ago, riding backroads with Bryson, she gets that from her parents. Her location stopped for an hour at the same place, and the place I KNOW drops location. I knew exactly what roads she was riding because I did that for hours on end before I had kids. I convinced myself she had been kidnapped and murdered and gah I could not get it together. I scared her to death with my calls and texts, and I cried so hard after. Full of guilt for reflecting onto her, full of tears because I felt the depth of losing a child. I love breaks from the littles sometimes, but right now, when they are gone from me, I feel it, I am so nervous. 

Last week Dillon was just sitting in the living room, and she turned around full of tears and said I just feel so heavy right now mama, I miss Ky so much I feel it on me. I told her I knew that feeling. You will just be doing any random thing and it feels like a literal blanket, a weighted one, that wraps around you, and it’s of sadness. 

Yana asks at least once a week “where is Ky?” She knows the answer, but it’s almost as if she just needs to make sure it’s real. We all feel that I think.

In the same breath we are still so full of joy. I told someone this week that holding him, singing him into Heaven, caring for him, it was all such joy. If you have never experienced God speaking to you, it’s hard to explain. When He tells you to do something, almost always, it’s uncomfortable at best, at worst, impossible. When you ask Matthew about caring for Ky, he will tell you a thousand times how “easy” it was. And it was. We walked around on 3/4 hours on average of very interrupted sleep but were not tired. We survived on one income. One of us made every activity the other kids had. We had no sickness we couldn’t manage at home. And our power only flickered off once during a storm. ALL of the things we feared, God made a way. I never mastered sputum or trachs as a nurse in the hospital, and I don’t do gross, I am a paper work nurse. But not only did I, but Matthew, Dillon, and I learned ALL of Ky’s care and provided it with ease. Yana and Sophia knew how to give meds and water flushes as well as hook up a feeding via a feeding pump. We had nurses that not only didn’t mind our chaos, but that LOVED our babies and our home. That joined us in prayer, in our worship, in our everything with gladness. 

Parker told me this week that the week after Ky died when she went back to school God was so good to her. She didn’t want to leave us, or home, but she’s in a very competitive program and can’t miss days. If you know her, you know sunsets and sunrises are her favorite thing on earth. It had been dark every morning for her drives up and every evening for her drives home for months. But that week she got a beautiful sunrise and a hand painted sunset every day that week. She said she knew He did that just for her. 

So the waves of grief do come. But also the waves of God’s goodness, mercy and grace too. This morning I sat in our rocker, where I held our baby last and I opened up the pages of my Bible to scripture after scripture that showed me that God is alive and His word is relevant to my life. His words have brought me so much comfort the last few weeks. I know that everything we have been through is to grow us and others closer to Him. I know that nothing we do for Him returns void. I know that our grief and pain here is nothing compared to the joy that is coming. God makes all things new, and He works all things for His good and glory. 

2025 A Time for Everything

Ecclesiastes 3:1 For everything there is a season, and a time for every matter under heaven.

2025 has been officially the hardest year of our lives, of our marriage, of our parenting journey. Having a 2 year in your mid forties ain’t for the weak!!! Having a severely medical complex kid in a nursing shortage, is exhausting. Living with four children born in and from trauma is hard. Parenting adult children while doing all of the above…let’s just say the mom/dad guilt is real.

None of our reality has been easy in this season.This season has brought us to our knees. The weight and depth of our calling is heavy, and the “I can’t do this on my own” is so real. But this has also been the sweet spot. This is where we have been able to see God work. He’s worked through words of encouragement from our friends. Meals brought to our house. Tears in our nightly prayer times. And in the vulnerability we have shared with our people lately, that we aren’t it, we can’t do it all, and praise God we have a savior that carries us in these times! 2025 has brought so many highs and lows.

Kinnley and Parker celebrated Eben’s first birthday in 2025 AND brought him home TWIN brothers!!! Watching our girl be an amazing wife and mommy is the biggest blessing. She is such a good mom. And still manages to be the BEST big sister to all her siblings. She and Parker help Matthew and I constantly and consistently, and we are so thankful for them. Eben, Cannan and Abram are the presents we get for parenting. I love each one of them so much. Eben is old enough to want to hang tight with his Nan and Pop and it is unexplainable the gift he is!

Our Tatiebug married the love of her life in 2025. And this mama WRESTLED with that! If you know us, you know Tate was attached at my hip. She left, moved to another town, another church, and started her very own life. BUT GOD. I have watched her in 2025 grow into the most amazing woman. She serves her church, her community, her husband, exactly how she was meant to do. She loves so big, and as selfishly as I wanted to keep that all to myself for all our days, He knew exactly what she was meant for, and He is walking her though that. I could not be more proud of her, or her husband Jace. He is the most amazing provider, and he is her rock. She doesn’t want for a thing and he loves her so big. She too is the most amazing big sister to her siblings. Her and Jace have shown up at school, at the house, and even a couple ER/hospital visits to make sure her siblings were okay!

Parker graduated a year early and started cosmetology school in 2025. She stepped ALL the way out of her comfort zone and has made friends and learned SO much. She is the baby and the last one standing so to speak of the first batch. She struggled finding her place without Tate home. But she too has eased right on in to that best big sister role, much to her little sisters distaste LOL. She is still our bold, outspoken, spoiled baby of the first batch, but also the jump in and help when mom and dad are drowning. She keeps Bryson around, and if you have seen us with him, or with her, you know she scored one a lot like her daddy. He jumps in and helps too. His mama raised him to be a wonderful big brother, and we get to share some of that at our house as well!

Dillon, who was supposed to be the baby has followed in her big sisters’ footsteps and stepped up. She has learned to help with the littles, she packs lunches, helps clean up, and in 2025 has learned ALL of Ky’s care needs. She literally has more experience with his care than any of the other kids, big girls included. She can hang with the best nurses and respiratory therapists and probably even give them a run for their money in the peds department! Ky ADORES her. He grins every time he hears her footsteps, and he melts when she climbs up in his bed. She is amazing.

It has taken Sophia three solid years to get 100% comfortable here, but 2025 was her year. She is hands down the funniest, and sassiest of the sister crew. She knows the world, loss and trauma in more ways than any of the others, and watching her comfortable in her own skin, home and community brings a pride I cannot explain. She is the best with Yana, and that’s a whole post in and of itself. She is our little popular one, she has more friends than I can count and she LOVES school. She does fine in class, but socializing is her way of life. I love watching her grow up!

Yana. 2025 brought us the terrible twos and whewwwww did she bring them. Yana is the most bull headed, assertive, independent, repetitive, and cute human I have ever known. She has more personality in her pinky than our whole family has put together. She may be the littlest and youngest of the bunch, but best believe she gets the attention. Her vocabulary is hilarious, and it’s obvious she has big age gaps in her siblings. She has more energy than anyone I have ever known. She LOVES being an auntie. Eben is her best friend, and she thinks Canaan and Abram are the best things on earth. She drives us NUTS, but she is so fun!!

2025 has been the year for King Ky as we lovingly call him. Matthew and I knew from the day we met Ky that his brain and body were not meant for a long life. We knew when we brought him home, that one day we would not have him anymore. We even prayed over and discussed at length how that would affect the girls. We still knew God wanted us to bring him home. Ky has changed the last two months. He has fought sickness after sickness and his body is weary. We can see the effects of his previous traumas and the exhaustion his brain is experiencing from sustaining itself. Right now, his future looks more uncertain that it has before. Winter is not a friend to medically fragile children. December has never been a friend to Ky. We know all of those things, yet watching them play out brings a fear and uncertainty that we aren’t sure what to do with. When there are other little hearts that love him with ALL they have, it makes it all even more complicated. In November while we played with Eben and rocked NICU babies, we spent days back and forth with our UNC team on Ky’s changes. We decided together that it was time to let Hospice come alongside and walk us through this next season. We have been blessed with a pediatric hospice that works with our local providers as well as our UNC team. Despite the decline, Ky has thrived at home. He loves having a house full of sisters. He has gained two nurses that are like a mama and grandma to him. He is SO spoiled. He is King Ky and our home is his castle. We are all so grateful to get to be that for him. He brings everyone such joy. I wish you could see us all when he gives us a smile. He melts you!

In all of this, we have seen our village step up and step in like never before. For the first time, well the first time we would admit it anyway, we have taken on more than we can do without help. Our church family, our family, and our friends have surrounded us. We have added in village members with Ky’s nursing staff, Parker’s family, Jace’s family, Bryson’s family, Karen and Quint’s village, our UNC and Sandhills teams and now hospice. We are SO well supported!!

We know that God called us to all of the above. And where He leads us, He will sustain us. We have to continue to lean on Him. To dig into His word. And to trust Him even when we cannot see what’s in front of us. As we end 2025 and look forward to 2026, we REST and REMAIN in Him. Thank you to those that love us so well, that pray for us on a regular, and that cheer us on. We are so blessed. When I look at the pictures and see what all God has brought to our lives, I can’t help but be filled with gratitude and joy, that we get the privilege to work for Him, and for His glory. Merry CHRISTmas